So many referrals, so little time. The geneticist located in Chicago was on a 6 month wait list. However, our Neurosurgeon was adamant on G being seen a lot sooner. Our Pediatrician and the Neurosurgeon both called to plead our case and they finally placed us on an expedited wait list. We were able to be seen the first week of May, which was so much sooner than we expected. Our appointment lasted close to 3 hours. He does a full exam, then incorporates an hour of physical therapy evaluation and then comes back in to discuss his findings. Again, it was a wonderful experience in his office. They are all a bit old school, with paper charts and such, but he definitely knows his stuff.
We were able to leave with a therapy plan to help build up muscle tone before surgery incase we decide to go that route.
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